About trying to raise a boy with Autism and ADHD whilst keeping a sense of humour.

Sunday, March 4, 2012

The new year woes.


Well after a quiet new years eve we found ourselves on new years day at the after hours Dr's.
It seems the "off" behaviour of Thomas was not due to the moon, or the excitement of Christmas but the fact he had a raging ear infection and we did not know it until his ear drum popped. We felt like fantastic parents that day. Having said that there were no other classic symptoms like fevers to go with it.
This start to the year was not what we anticipated. But it happened. We had two courses of antibiotic until he was over it. Mummy not so lucky. Yes because in classic style what ever Thomas gets mummy gets too, except mummy does not have the immune system to handle even the run of the mill bugs.



We also have had some appointments with the Marter Sleep and respiratory clinic. For one week before our visit we had to wear a special watch. This was not like a time watch but was an activity level watch. Whilst he wore this watch we had to fill in paper work to note his sleep v's activity times of the day.


The results were less than satisfactory but did cement EVERYTHING we had been saying about our little man since he could walk (at 8months!). He NEVER stays still. He is always on the go. But more alarming was his movement level in his sleep. They were way too high. Even on his "good" nights, they were not even at a satisfactory level of stillness.

This lead us to more testing, this included a very large blood test that was the most grueling experience for all involved, including the pathology staff. I tried so hard not to cry during this process. But mummy had a plan to help forget the pain. A Bravery award. A good bravery award, or so mummy thought.



So for a month Thomas has been asking for Hiro the train from the Thomas the Tank Engine series. It is quiet expensive for a single toy but I found patchwork Hiro at an awesome price and grabbed it. Well evidently it was the WRONG one. and didn't I hear about it, actually I am still hearing about it.



Yes the ASD child who must have the correct toy for his set suddenly appeared. I was floored. Devastated in fact. Had I not raised him better to be grateful for any gift? Evidently I have been told this is not an uncommon issue that many ASD parents face. searching for that right train, or lego or Cars car to avoid the fall out after wards.

So now I know, work out exactly what train, Lego, car he has his heart set on (All I knew was he wanted the Hiro train, I had not paid enough attention to the detail of what Hiro train to buy.). Then go hunting it down. In fact I am still hunting the right Hiro train at the right price as i refuse to pay a fortune for these toys.

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